Cortical Visual Impairment


So Maureen, Ciaran and I had a very successful road trip to Pittsburgh! We left Burlington on Sunday around noon and arrived at our hotel around 6:00pm after a few wrong turns thanks to my malfunctioning GPS system.  We got settled and then headed out for a quick bite to eat. Ciaran was pretty darn cute going to sleep that night.  He kept lifting his head up to make sure that Maureen was still in the other bed - each time he realized she was, he flashed the most heart melting smile :)

On Monday morning, we got up, got showered and headed out for a hearty breakfast before Ciaran's assessment.  Our appointment with Dr. Roman was at 11:00am.  She spent over two hours assessing Ciaran's vision and I must say her assessment was so eye opening!!!  It provided so much insight into Ciaran's visual world and his difficulties with visual processing, visual organizing, and his inability/challenges in processing visual clutter/complex visual designs.  Dr. Roman diagnosed Ciaran with Cortical Vision Impairment back in March, Upon further testing, it is so obvious that Ciaran has CVI. If you are interested in better understanding what exactly CVI is, click here .

How I have continually been told for the past five years by the leading vision specialists in Canada that Ciaran does NOT have CVI (because his vision is too good) and instead delayed visual maturation is BEYOND ME! This is a huge piece when it comes to Ciaran's education - thank goodness we were introduced to Dr. Christine Roman. A sentiment that she shared during the assessment that really struck a chord for me was "If Ciaran FAILS in school - it is not because Ciaran is FAILING - it is the school FAILING to provide Ciaran with the appropriate accommodations necessary to meet his vision needs as a learner" - what an empowering and exciting insight for Cris and I!!!!


Picture of Maureen and Ciaran playing prior to assessment

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School is Out for SUMMER :)

School is out for summer and I have to admit I am so excited to be off!  Already our summer is off to an amazing start - the hot weather has allowed us to get a lot of use out of the pool which is amazing therapy for Ciaran and Shay.  I think Cris and I are reminded daily as to how lucky we are that we found this particular house for the boys...it is absolutely amazing and we are so thankful that we find ourselves here...

I have a trillion posts to catch up on and am hoping I can get back to a bit of blogging this summer.  Tomorrow morning Ciaran and I are heading out with Maureen (PT from Sunnybrook and friend) to Pittsburgh for an eye assessment with Dr. Christine Roman.  Back in March, Ciaran had an informal assessment with her at a 'teach and share' at Sunnybrook Hospital.  She provided more insight into Ciaran's world in  45 minutes than we have gotten in years elsewhere.

She diagnosed Ciaran with Cortical Visual Impairment - Stage 7.  She taught us how Ciaran's organizational system in his brain is quite disorganized and taught us that we would need to teach Ciaran strategies and salient features of everyday items to help him organize his system and have information available for easy retrieval.

I was thinking about his system tonight after he went to bed.  As I was thinking, I walked into the Playroom to tidy up the boys' toys and found this....what Ciaran was organizing before he went to bed tonight.  He is such an enigma to me sometimes!!!!  Can't wait to share what I learn in the next few days!!!!