Before I left for the hospital this morning, I decided that no matter what happened today, I was going to keep a positive outlook and be strong. During rounds, I became very worried as to whether or not I would be successful with my goal. Shay had just had a few BRATTY's (forgetting to breathe and needing assistance) and there were a number of concerns regarding Ciaran. I listened all of the specialists at the rounds tried to keep it together despite the fact that I was feeling disillusioned. I left the NICU to regain my focus and decided that today was going to be a good day - and a good day it was!!!
Ciaran graduated from the conventional ventilator to the CPAP ventilator today. He has nearly already caught up with Shay - he requires a bit more oxygen but other than that - they are on par when it comes to their breathing. Ciaran had had quite a few spells in the past few days and his breathing monitors were going off constantly - apparently he was just trying to tell us that he was sick and tired of having a tube going down his throat to assist him with his breathing. Once he was put onto the CPAP - he had no other spells for the rest of the day! I am so impressed with our little fighter...he ceases to amaze me!
Shay was out for another cuddle today. He ended up being out for over two hours - it was amazing! He was totally alert...he is getting so big and strong....and he did not have one spell during our visit...it was two phenomenal hours! Looking forward to holding Ciaran tomorrow!!! Being that he is on the CPAP machine means that he too can come out for a cuddle everyday...both of us are so very excited about this!
Finally, the last big news of the day. Bev (the nurse that I have spoken about a number of times because she is unbelievable) offered to be our primary caregiver for the boys during the day. This will mean that we will have a consistent nurse with the boys which is really important especially for monitoring Ciaran. Also, we have one of the kindest, sweetest, most knowledgeable nurses in the unit...we are so very lucky...Bev has seriously been a God send to us....
That is all the news for today! It was a really good day today...hopefully, we can carry this positive progress into tonight and tomorrow!
all the best!
cris, liza, ciaran and shay